So much I've wanted to add since the publication in 2014. Hopefully in F all 2023 an updated version will be released.
Quick Update Andrew turns 16 soon! Hes thriving in high school home school and has not been in the hospital or in the ER in 2 years! We have been able to treat the occasional migraine at home
in the last 3 -4 years. What a journey but we are here to say no matter how bad it is.. It gets better.